Metastatic Breast Cancer Alliance
The Metastatic Breast Cancer Alliance (MBCA) operates MBC Connect, a patient-powered registry, on the Medaptive Health platform. It allows patients to share disease and treatment history, quality of life information, and receive clinical trial matches.
- 70%+ completion rate on all instruments
- 50% of participants have shared treatment history
“Metastatic breast cancer patients can become their own best advocate by using MBC Connect 2.0 to match them with potential clinical trials which allows them to explore future treatment options.”
Beyond Celiac operates Go Beyond Celiac, a patient-powered registry that was migrated to the Medaptive Health platform from a legacy vendor. It allows patients to share information regarding their life before and after diagnosis, symptom information, and information regarding diet and disease management.
- 146% increase in registry participation in 1st year after migration to Medaptive platform
- >99% participant retention on the platform
“Understanding how people have been impacted by celiac disease is some of the most important information researchers and doctors need in order to accelerate celiac disease research. Go Beyond Celiac provides us with the ability to tell them what life is like before, during and after our diagnosis.”
Working with Pfizer and the Metastatic Breast Cancer Alliance, Medaptive Health has developed and deployed the REACT surveys, two new instruments to understand the effects of the COVID-19 pandemic on people living with metastatic breast cancer.
“We’re pleased to collaborate with Medaptive Health and the Metastatic Breast Cancer Alliance on the REACT surveys, which will help us to better understand the profound effect the pandemic has had on patients living with metastatic breast cancer and, in turn, help inform advocacy organizations and the medical community as they work to put in place long-term plans to address the challenges these women and men are facing every day.”